Monday, February 2, 2009

Dylan update

Well....no new is good news?? (: We met with Dylan Dr. today and he was glad to report that afor now, there is no evidence of seizures. He wants to do another EEG in a month and if that one shows no activity then we will do a 24 hour EEG were he is hooked up to the EEG monitor for 24 hours. If both of those tests come back clean, then he sadi he would feel comfortable seeing us in a year to do a folowup. And then he showed us all of the MRI "footage". He began by telling me that he was glad that we went to Fontana Kaiser for the MRI..here is how our conversation went:

Dr.: Great thing you wen tot Fontana so they could sedate Dylan for the MRI
Me: Why is that?
Dr.: This MRI is s clear and it is easy to read. It has no fussyspots like it would if he were awake
Me: Well, then I am happy to report that they tried the MRI without sedation and was very pleased that he could sit so still.
Dr.: Did he fall asleep in there?
Me: No
Dr.:He did better than most adults.

Dylan was beaming. And of course very proud of himself...I was proud of him too! The Dr. also told us that he was amazed when he saw Dylan's MRI. He told me that when you have a premature birth, that you have things about your physical appearance sometimes that gives it away...as well as your brain. He mentioned that there are spots on the brain that are typically enlarged...and Dylan's is normal. He said by looking at the MRI alone, he would've never guessed he was born at 27 weeks. He said that was good news as well. So now we wait a month..and try to figure out how to get him to focus in the meantime...

2 comments:

Eric and Laura said...

Well, that stinks that you still don't know what the deal is, but good that it's not epilepsy. Don't you just hate the diagnostic waiting game. Who was it who said they wanted Dr. House to be their doctor? Maybe that's not such a bad idea...

Jenna said...

Good luck finding out what is going on!!! Poor guy!

It sucks to have to do the rounds of doctors in the hunt for a diagnosis. Which even then is a question mark. Really, really good luck!